day 963

Dr. P, my pain doc, offered to write a letter to the insurance company to see if she can get me approved for Provigil so I can be up in the daytime and sleep at night like I should be doing. I'm hoping it works. This upside down routine is bugging me a lot.

My psychiatrist suggested I might have narcolepsy because I have been falling asleep while sitting up, while eating or drinking coffee and the like. I will mention that to my internist when I see her this week.

I'm glad I'm on Methadone right now. I'm sure it's helping with my badly bruised tailbone. It hurts like heck even with the pain meds.

I am so tired...

May 7

I see the pain doc today at 10.

I'm going to tell her they denied the Provigil and see if she has any other ideas. It was nice when I was taking that pill because it kept me awake all day and then I could sleep at night but that isn't happening any more.

I have to figure out a new combination of early afternoon meds. Right now the ones I take in the afternoon make me so sick I want to throw up. That's no fun at all.

I still have the edema from the Methadone but it's not as bad because I make sure to keep my feet up as much as I can.

I'm starting to get really tired now after being up all night. I think maybe I'll go take a nap for a while.

This is no fun at all.

It's been a while

I haven't written for a while.

Things have been pretty much the same. I'm still not sleeping on a decent, regular schedule. It's more like a few hours at a time and then in between I'm always tired.

I'm also frustrated. I wish I could work. I'm tired of being close on money and having to watch pennies. The house payment will be late this week. It's only two days, but I don't like being so darn tight. I'd much rather be working and feeling like I'm doing something than sitting here and getting a check equal to one week's gross pay. That just really stinks.

My head still hurts. The past week or so it's been a little more than before, but I think it's an allergy thing. I dread making yet another appointment with yet another doctor; I see enough of them as it is.

While we're on that subject, I need to see a dentist, but with the facial pain I'm more than a bit apprehensive about that. I need to see my primary doc. I haven't seen her in 2 years or so.

The Methadone still has me swelling up. It's a lovely feeling. I feel like a cow.

I'm a bit depressed. I guess that's obvious.

still not sleeping well

My sleep cycle is still a mess. I've decided to take it into hand one way or another.

Last night when I took my bedtime pain medicine I also took 2 extra strength acetaminophen and 30 mg of Restoril. I had managed to get everything done that needed doing and we were in bed by 10 o'clock. I fell asleep pretty quickly and slept straight till 3 when hubby woke me up. I made him breakfast and was asleep in the recliner almost before he left the house at 4:30 to head for work. I slept till 7:30. I'm still tired, but not quite as bad as I was. It's going to take some time to get it going, though. I have a lot of catching up to do.

Today I have to go check the mail and then go to the bank so I can get some cash for hubby's break at work. He doesn't use much - just about $1.50 a day. After that, I will come back, check for eggs, give the chickens fresh water, and then I'm going to take a nap.

It's hard when the meds you need for your pain keep you from sleeping and then you start suffering from that. One or the other....that's certainly a tough decision.

Other than that all the meds are working well. All I can say is it's about time.

can I get any more tired?

Man, I gotta get some decent sleep.

My driving is off, my thinking is screwy, and I keep nodding off sitting up.

I can't spell for beans.

I hate not being able to sleep. Even 30 mg of Restoril only gives me 4 hours. This is ridiculous.

I'm going to try and sleep. I need to sleep. I have to sleep. I'm starting to worry me.

day 919

The new Methadone dose is working pretty well.

My sleep schedule is all screwed up but I guess I'm gonna have to live with that. I got a sample of Provigil but it's not FDA-approved for sleeping difficulty due to taking narcotics for chronic pain so the insurance says it won't pay. I'm going to appeal. It can't hurt. After all, I already don't have it. What can I lose?

They say to try Ritalin or Adderal or another stimulant. Yeah. That sounds like tons of fun.

On the upside the pain relief is decent enough I can do some sewing agian. That's nice.

Now it's time to fire the neurologist and get another one who doesn't think that just because I'm certifiably nuts I also have no pain issues at all. One doesn't necessarily mean the other.

I don't think they've figured that out yet.

2 in 2 days

The 20th and 21st I had migraines. They were, I believe, 2 separate migraines. They were about 24 hours apart. A Maxalt just about did the trick on both of them. However, I now need a refill, and I hate paying the copay for these orally disintegrating tabs because they are far from cheap. Still, it's better than hurting.

We're supposed to go to Abby's for dinner tomorrow. I'm going to have to make sure and take it easy so I can make it. Becky and her family won't be coming but JR will. His girlfriend is working. All this family stuff and some people not wanting to come if others are there is a big fat pain in the butt. I'm pretty sure a discussion about that was at least partially responsible for triggering the first migraine if not both of them.

I'm actually tired. I may get some sleep tonight. I forget to take the Restoril for some reason...I need to move it and just take it every night.

I'm just so tired of taking all these drugs...