tag:blogger.com,1999:blog-19808903.post5199245908183860668..comments2023-09-13T09:04:06.104-05:00Comments on living with AFP: irkedTrishahttp://www.blogger.com/profile/12631147253931042678noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-19808903.post-26729461172394544372006-10-16T21:02:00.000-05:002006-10-16T21:02:00.000-05:00I saw your comment on my blog; I don't have much ...I saw your comment on my blog; I don't have much time to browse much through your blog at this point, but from what I can see - wow - your situation seems very much like my aunt's. The ONLY relief she gets from her headaches (which are more debilitating than the AFP on some level) is from a drug called Amerge. She has to "ration" it as they will not give her a month's supply due to the volatility of the drug (I think she is up to 18 a month or something like that). Or she gets relief from the IV drip when she occassionally has to go to the ER, which I think is liquid morphine. Just thought I'd share. <br /><br />You're right. You shouldn't have to prove yourself to the medical world that you are not trying to score drugs, or defend yourself. <br /><br />I do believe that with the birth of the internet and consequently a more clear understanding that TN and AFP are not such rare conditions afterall, that more research $$ will be generated to find substantial results to help people like yourself, hopefully within the next 5 years or so, or at least some dramatic improvements in the understanding and treatment of the condition. <br /><br />Hang in there. If I could take the pain away, I would.RusticateGirlhttps://www.blogger.com/profile/09565521197499573631noreply@blogger.com