tag:blogger.com,1999:blog-19808903.post9100774478493043896..comments2023-09-13T09:04:06.104-05:00Comments on living with AFP: blahTrishahttp://www.blogger.com/profile/12631147253931042678noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-19808903.post-4918086978233302082007-10-24T21:23:00.000-05:002007-10-24T21:23:00.000-05:00have you tried this? This is an email I drafted ...have you tried this? This is an email I drafted yesterday to my cousin: <BR/><BR/>------------------<BR/>Speaking of your mom… (totally off-topic) <BR/><BR/> I sent an email to your mom & dad several weeks before Deep Creek. Eric, your dad and I truly believe this would be a worthwhile procedure for her to try. Because it’s * not invasive * and makes total sense for her condition, plus, it’s not often that you hear of a procedure that works for atypical pain patients. Your dad spent hours researching it after I sent to him and agreed that it seems extremely promising. So, we both give it the thumbs-up, which is not something to do lightly when it comes to any more tinkering with your mom’s condition. Your mom didn’t even read it/won’t consider anything and told me at Deep Creek it’s because she can’t keep getting her hopes up only to be let down again. Which I completely understand. However, I stressed that it’s not an invasive thing. They keep you awake so you can tell the doctor where to guide the sensor to the pain. Anyway, I think enough time has passed from my conversation with her at Deep Creek that I’m going to resend the email again to her and get her to think about it. I sort of piqued her interest (maybe) when I talked to her about it in person, but I don’t want to push the issue too much since she is so (understandably) sensitive on the matter. <BR/><BR/> The basics of this article I found on Reader’s Digest re: back pain, which got me to thinking about it for your mom’s pain. The original article is here: http://www.readersdigest.com.my/rd/rdhtml/en/magazine/mag_fullcontent.jsp?cid=4780&p=2, and my thought process was correct in that it’s working for facial pain victims. And here is a testimonial from an atypical patient who had the neurostimulators implanted in cheeks: http://facial-neuralgia.org/treatments/surgical/neurostimulatorexperience.html <BR/><BR/>Anyway, thought I’d share.RusticateGirlhttps://www.blogger.com/profile/09565521197499573631noreply@blogger.comtag:blogger.com,1999:blog-19808903.post-26494433876934662382007-10-23T07:11:00.000-05:002007-10-23T07:11:00.000-05:00I got a hotel in Chicago (not downtown - the Hilto...I got a hotel in Chicago (not downtown - the Hilton at the Airport) for $60/night on hotwire.com. <BR/><BR/>*hugs*Anonymoushttps://www.blogger.com/profile/15271123556705779178noreply@blogger.com