Monday, October 22, 2007

blah

Yet another doc at a loss as to what to do with me...

She wants me to go to a neuropsychiatrist and to the Diamond Headache Clinic in Chicago. I know nothing about Chicago except that it's expensive. The hotel rooms in that area run $100 a night and up. If the clinic wants you to do biofeedback, you have to pay on that day and file for reimbursement.

My question is, what do poor people do? Just hurt? We can't pay that kind of money...unless we don't pay some of our bills, and lose the house. From what I read about the clinic I'd be a frequent flyer for a while becaause they expect several biofeedback appointments, close monitoring of pain medications and effects, and other stuff like that.

I'm going to check on a pain doc in the same town the new doc is in and make the neuropsych appointment and take it from there. I can't afford this stuff. Maybe I'll just have to learn to deal with it. I just hope they don't take my Methadone away.

2 comments:

Sara said...

I got a hotel in Chicago (not downtown - the Hilton at the Airport) for $60/night on hotwire.com.

*hugs*

RusticateGirl said...

have you tried this? This is an email I drafted yesterday to my cousin:

------------------
Speaking of your mom… (totally off-topic)

I sent an email to your mom & dad several weeks before Deep Creek. Eric, your dad and I truly believe this would be a worthwhile procedure for her to try. Because it’s * not invasive * and makes total sense for her condition, plus, it’s not often that you hear of a procedure that works for atypical pain patients. Your dad spent hours researching it after I sent to him and agreed that it seems extremely promising. So, we both give it the thumbs-up, which is not something to do lightly when it comes to any more tinkering with your mom’s condition. Your mom didn’t even read it/won’t consider anything and told me at Deep Creek it’s because she can’t keep getting her hopes up only to be let down again. Which I completely understand. However, I stressed that it’s not an invasive thing. They keep you awake so you can tell the doctor where to guide the sensor to the pain. Anyway, I think enough time has passed from my conversation with her at Deep Creek that I’m going to resend the email again to her and get her to think about it. I sort of piqued her interest (maybe) when I talked to her about it in person, but I don’t want to push the issue too much since she is so (understandably) sensitive on the matter.

The basics of this article I found on Reader’s Digest re: back pain, which got me to thinking about it for your mom’s pain. The original article is here: http://www.readersdigest.com.my/rd/rdhtml/en/magazine/mag_fullcontent.jsp?cid=4780&p=2, and my thought process was correct in that it’s working for facial pain victims. And here is a testimonial from an atypical patient who had the neurostimulators implanted in cheeks: http://facial-neuralgia.org/treatments/surgical/neurostimulatorexperience.html

Anyway, thought I’d share.