Yet another doc at a loss as to what to do with me...
She wants me to go to a neuropsychiatrist and to the Diamond Headache Clinic in Chicago. I know nothing about Chicago except that it's expensive. The hotel rooms in that area run $100 a night and up. If the clinic wants you to do biofeedback, you have to pay on that day and file for reimbursement.
My question is, what do poor people do? Just hurt? We can't pay that kind of money...unless we don't pay some of our bills, and lose the house. From what I read about the clinic I'd be a frequent flyer for a while becaause they expect several biofeedback appointments, close monitoring of pain medications and effects, and other stuff like that.
I'm going to check on a pain doc in the same town the new doc is in and make the neuropsych appointment and take it from there. I can't afford this stuff. Maybe I'll just have to learn to deal with it. I just hope they don't take my Methadone away.
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I've been here on earth for just over half a century. For the last several years, I've had a chronic pain condition as my constant companion. I've learned to value each and every day simply because it is there; to love and appreciate my family and friends; to enjoy life and love no matter the restrictions on my time or activity; and, most importantly, to love and worship God in any way I can regardless of my limitations.
About Me
- Trisha
- Simpleadditions on Etsy
The older I get, the more I lean on God. He is my all in all and from Him I get the strength to go on from day to day. Currently He has allowed me to be afflicted with a nerve-based disability that has taken me out of the mainstream workplace and changed the way I live my life; in this, I see more and more how dependent I am on Him for every moment of every day. Without Him, I am nothing. With Him, I can do all things.
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"For I know the thoughts and plans that I have for you, says the Lord, thoughts and plans for welfare and peace and not for evil, to give you hope in your final outcome. Then you will call upon Me, and you will come and pray to Me, and I will hear and heed you. Then you will seek Me, inquire for, and require Me [as a vital necessity] and find Me when you search for Me with all your heart. I will be found by you, says the Lord, and I will release you from captivity and gather you from all the nations and all the places to which I have driven you, says the Lord, and I will bring you back to the place from which I caused you to be carried away captive." Jeremiah 29:11-14, Amplified Bible
2 comments:
I got a hotel in Chicago (not downtown - the Hilton at the Airport) for $60/night on hotwire.com.
*hugs*
have you tried this? This is an email I drafted yesterday to my cousin:
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Speaking of your mom… (totally off-topic)
I sent an email to your mom & dad several weeks before Deep Creek. Eric, your dad and I truly believe this would be a worthwhile procedure for her to try. Because it’s * not invasive * and makes total sense for her condition, plus, it’s not often that you hear of a procedure that works for atypical pain patients. Your dad spent hours researching it after I sent to him and agreed that it seems extremely promising. So, we both give it the thumbs-up, which is not something to do lightly when it comes to any more tinkering with your mom’s condition. Your mom didn’t even read it/won’t consider anything and told me at Deep Creek it’s because she can’t keep getting her hopes up only to be let down again. Which I completely understand. However, I stressed that it’s not an invasive thing. They keep you awake so you can tell the doctor where to guide the sensor to the pain. Anyway, I think enough time has passed from my conversation with her at Deep Creek that I’m going to resend the email again to her and get her to think about it. I sort of piqued her interest (maybe) when I talked to her about it in person, but I don’t want to push the issue too much since she is so (understandably) sensitive on the matter.
The basics of this article I found on Reader’s Digest re: back pain, which got me to thinking about it for your mom’s pain. The original article is here: http://www.readersdigest.com.my/rd/rdhtml/en/magazine/mag_fullcontent.jsp?cid=4780&p=2, and my thought process was correct in that it’s working for facial pain victims. And here is a testimonial from an atypical patient who had the neurostimulators implanted in cheeks: http://facial-neuralgia.org/treatments/surgical/neurostimulatorexperience.html
Anyway, thought I’d share.
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